I am typing this post on aboard the Disney wonder waching the Bahamas retreat into the distance
( well if that does not sound like the beginning of a story book I don’t know what does )
Here is a little of summary of what we did
Here is a little of summary of what we did
Thursday
We set sail from Cape Canaveral .
We have had to stay for a night at the Residence Inn – a hotel that R really likes as they have good internet service – plus ample space
Also we are able to cater to his very specific taste profile ( by bringing food from home ) as they have a kitchen
We go the ship-
Ours is called the Disney Wonder - and a wonder it is
We go the ship-
Ours is called the Disney Wonder - and a wonder it is
Our room is quite adorable and has a nice double bathroom and a private balcony
This little balcony that looks out into the ocean may be my favorite part of the ship
All three of us spend time on the balcony - R spends a lot of time standing at the edge and looking down ( while we keep an eagle eye on him - afraid that he will fall down )
There is a party on the deck as a send off to Bahamas and all the characters come and do a lovely dance
R sits atop DH's shoulders and has a good time
.
R dances too
But he is quite alarmed when we pull way and keeps asking for the hotel ( Residence Inn ) .
“All done Ship hotel “ he mewls
We go and watch a show and I think of how much I love Disney when I see that they actually have sign lanuage on the side ( see in the picture and they do a FANTASTIC job ) for the hearing impaired and all their public TV's have the captioning on
This is a main reason why we spend so many dollars on Disney - becasue they go out of the way to welcome people of all kinds- especially people with disabilities
When we return to our room we find the room has had a lovely turn down service and the host has actually shaped a towel in the shape of an animal
Can you see the monkey hanging from the side ?
We go and watch a show and I think of how much I love Disney when I see that they actually have sign lanuage on the side ( see in the picture and they do a FANTASTIC job ) for the hearing impaired and all their public TV's have the captioning on
This is a main reason why we spend so many dollars on Disney - becasue they go out of the way to welcome people of all kinds- especially people with disabilities
When we return to our room we find the room has had a lovely turn down service and the host has actually shaped a towel in the shape of an animal
Can you see the monkey hanging from the side ?
Friday
R has slept very poorly last night and so have we
DH is a doll and brings me break fast in bed
I am very excited this morning as we are going to be playing with Dolphins on the Blue Lagoon Island of Nassau
I simply ADORE dolphins
Was there a lovelier creature ?
We stand in line waiting for this great adventure - But R is sooooo reluctant to go and keeps whining that he is done with the ship .
My heart sinks as we have spend all this money and time for a vacation that he will enjoy and it suddenly seems like a waste .
( AND we have 10 more days to go – suddenly I think of how much easier it would have been to just spend some days at the cabin ).
I can feel my heart in my feet
And then I remind myself of how important it is to widen his experiences ( for this is one of the major factors that compounds autism as a disability – parents of auties get discouraged when their children don’t enjoy new experiences . And this is compounding problem as their children’s worlds shrink smaller and smaller as they try fewer and fewer new things.
While if they had persisted in trying – they would be so much better off in the future. For the children were not objecting to the activities but just to the newness )
Still this must be the one thing that I miss about the NT experience – the desire to explore- while R needs to be forced to explore and my eyes fill with tears
Just as a signal from above – two loud and whiny ( and NT ) kids throw a huge tantrum – their mother and their father look around embaressed . But I smile at them gratefully for they have reminded me that I am getting into the familiar autie mum trap of imagining that all is perfect in the NT world
Then another sign!
Two parents walk in with a severely disabled child in a wheel chair. The little girls eyes are closed and her hands are folded across her chest
I look at the mother gratefully - for her courage has inspired me.
If she can take a child whose eyes are closed to look at dolphins - surely I can take a child who merely wants to shut his eyes to this new expereince
Then another sign!
Two parents walk in with a severely disabled child in a wheel chair. The little girls eyes are closed and her hands are folded across her chest
I look at the mother gratefully - for her courage has inspired me.
If she can take a child whose eyes are closed to look at dolphins - surely I can take a child who merely wants to shut his eyes to this new expereince
We make our way in the boat
Once we reach the island and get to the alcove to play with the dolphins – R is PETRIFIED .
As I can clearly see that he is not enjoying himself – I tell him to go with DH ( that was a well spent 120 dollars for his ticket to play with dolphins)
R thinks that I am in mortal danger
From his perspective the dolphin is making squealing sounds and cavorting in the water
This is the dolphin “singing and dancing”
Yet to R – it appears that the dolphin is making a battle cry prior to eating me his mother
I get loads of dolphin hugs and kisses .
As R sees the hugs, he suddenly realises that the dolphin is being good to me.
The dolphin hugs like R – putting all his weight on me
He kisses like R too – just putting his mouth on mine but not puckering
Gosh how I enjoy this
When DH asks me if the encouter was worth it – I tease that Sean’s kisses are the best kisses ever
DH teases R that his mother now loves Sean because he is so nice and fun and now I will be with Sean
R looks away unhappily
But I find later that he takes his own preventative measures by throwing my bathing suit from our balcony into the ocean
DH speculates that he probably did this in as an act of jealousy
If I cannot wear a bathing suit - I will no longer be able to be in the ocean and spend time with Sean the dolphin
While I am really sad about the loss of the bathing suit – I am also very proud of R as this is planning at its finest
He is a very posessive child and the next day when two girls ask me to look at a castle they have made and I coo over the castle obligingly - I find that later after we all have moved away - he has kicked the castle down
If he was NT, I probably would be angry - but as I am an autie mom - I am very proud of his excellent problem solving
Saturday
We reach Castaway Cay – the other Bahamas island on this cruise
This island is owned by Disney and its really beautiful
R is crazy for the ocean and gets into the water even though the water is FREEZING
DH has a nice barbecue in the ocean - though a gale starts
There are so many fish in this ocean
We have a simply lovely time in Castaway Cay
R loves going out the dinner and the fuss the dining crew make over him - cutting his pizza - filling his sprite glass.
He loves how a water glass has his name on it ( Disney service is better than anything I have seen )
DH has brought a bottle of champagne as I have said that drinking wine on our own balcony is one of my "iconic moments"
We drink Champagne and watch the ship glide over the gorgeous ocean
Sometimes we toast the fun we have had and how happy we are
And some other times, like today - we celebrate our courage in trying out new things - even when things don't turn out perfectly
There are people who think of life as an adventure to be explored and there are people who think the world is a place to protect yourself from
And I know what we would rather be
13 comments:
Wow! I am so glad you went and had a fabulous time (even with a few bumps along the way.) The bathing suit in the ocean!!!!! Oh my! What genius! The pictures are wonderful and the memories made will be cherished forever. We've never done anything disney, but I love to read about how accommodating they are, and I hope that one day we will try something out!
So glad you took the chance.
"The dolphin hugs like R – putting all his weight on me
He kisses like R too – just putting his mouth on mine but not puckering"
:)
What an adventure! Days you and R will never forget.
I love the way he expressed his feelings about you and DH teasing each other, although I am sorry to hear you lost a bathing suit!
So glad you pressed through the initial disappointment - that is such a good reminder for all of us.
Thanks K for posting this, you always challenge me to look at things from a different perspective....
You and your family are truly a gift in mine and Rach's life..
glad you guys had a time to broaden your horizons and expand R's life. He is so lucky, blessed and fortunate to have you and DH.
Good for you for sticking with it...it is exhausting but worth it. Oh, I cannot believe that he threw your bathing suit overboard...ha!
*squealing* How fantastic! The cruise and the dolphins! (I love them too.) So wonderful that you did this trip, and I LOVE the fact that he threw your bathing suit into the ocean (although I would be sorry to lose the suit too)! Happy Holidays to you and many blessings in the New Year! xo
I gasped and startled Mr. Daddy as I read the part about the bathing suit! What a clever boy!
And I love the fact that you've given him new experiences and enjoyed new ones yourself as well! The scenery looks absolutely breathtaking!
(And yes, I love that there were sign language interpreters too! Next time may we book a trip with you? :)
Merriest Christmas!
I am so impressed with R's problem-solving, and with your proud framing and recognition of it!
And the photo of you on the balcony with the sun below the horizon casting up that orange glow... oh my.
Can't wait to hear what the rest of the cruise has in store!
I so want to get that close to a dolphin!! What a fabulous holiday.
Jen
I loved your account of your trip! I've always wondered how it would be to go to Disney with Daniel. Thank you for reminding me that this stuff IS possible.
Daniel sometimes resists a new experience, but then he'll ask to go back!
R is so funny. It's so great to see his problem solving. :D
The trip sounds beautiful- an absolute dream. Thank you for being real about the hard parts. It means so much to read about the trials and the triumphs and you write about it so well.
<3
I rather be like you.
Barbara
The cruise sounds amazing! I loved reading about R's problem-solving skills (sorry about your swimsuit though).
I can totally relate to that feeling of second-guessing when we hit rough patches, but thanks for the reminder that it's often the newness of it, and not the experience itself... and once the newness wears off it often gets better :). Something I need to keep in mind too...
Merry Christmas!
vacations are out of our comfort zone of routines, but the change of scenery and the experience are worth it in the end. Love the photos!
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